Friday, January 27, 2012

Jonah's second birthday!

Today is my little man's birthday. A sign of relief because we didn't know where we'd be a year and a half ago when we found out his diagnosis.

This little guy is getting stronger everyday and I'm impressed by him everyday. He's doing new things all the time! As I sit here and write this he's sitting with a boppy in front of him and he started falling backwards and he caught himself! A sure sign of his strength :) he loves to stand when you hold his hands, he'll even walk when you hold his hands. There's just not enough strength and balance there yet to keep him up by himself.

This new vest he's been wearing helps him a lot and so do his AFO's, which are kinda like braces for his feet. I can tell that he's really smart he's just unsure of how to show you.

Two years ago when I had this little guy, I had no clue what kind of ride we were in for. Even though I'm still unsure sometimes of why God chose us to take care if him, I am so glad he did! And God gives me strength and provision everyday on how to raise two men of God. I am beyond thankful. There are no words in any vocabulary that can explain the greatness of our God!

Deuteronomy 6:5-9

"Love the Lord your God with all your heart and with all your soul and with all your strength. These commandments that I give you today are to be upon your hearts. Impress them on your children. Talk about them when you sit at home and when you walk along the road, when you lie down and when you get up. Tie them as symbols on your hands and bind them on your foreheads. Write them on the doorframes of your houses and on your gates."

Sunday, January 22, 2012

Church

So today was the first time I have ever lead a congregation by myself. Like literally by myself. Well, technically my piano and I. God is so good! I cannot stress that enough! First of all, the people I got to worship with today were amazing! It was an honor and blessing to worship with people that have such a Passion for Christ! I cannot even explain it. And even though my fingers played some wrong notes here and there, it was ok because it did not matter! Because God was glorified in that place! I literally have never seen a congregation worship together like I did today, they were one in Christ!

On top of that, God blessed us once again by giving us a gift :) and then someone paid for our breakfast :o my heart is filled with joy. We spent the rest of the day with our boys just hanging out. I love my boys!

In your troubles, know that God remembers you and delights in you and who you are as a person and he so desires a relationship with you! Lord bless you!

Friday, January 20, 2012

First Blog Ever

I just wanted to try this out. I figure maybe I can help those who are struggling in the same areas as me.

First, I have a son, Jonah, who was born without his cerebellum. The cerebellum mainly controls balance and coordination. We found out when through an MRI when he was 6 months old. God has been so good to us! The prognosis of his condition, to this day, are still unknown. But he has exceeded many of the expectations of the doctors. He can't walk, yet, and he struggles with sitting but cognitively and socially/emotionally he's pretty much there. It takes him more practice than orbs kids but he gets it.

I have been struggling with the though of God healing my son. I want God to heal him and I KNOW God can heal him, but my faith? I'm lacking. I do not see God yet I believe. Why is it so much more difficult to believe he can fully heal my son? God is teaching me. God has been so good to us! God has always provided when we needed it, or rather when we had the faith. I'm now realizing faith has EVERYTHING to do with our relationship with God! So I keep going and I know that God will one day heal my son. In his timing.

Romans 14:23

"But the man who has doubts is condemned if he eats, because his eating is not from faith; and everything that does not come from faith is sin."